POSITION RESPONSIBILITIES
· Implement study protocols for acquisition of hospital and death records for participants of a large cohort study including:
· Obtain data from participants and next of kin
· Develop processes for facilitating the receipt of relevant study materials and collection of study
Data from participants and informants
· Develop and implement methods to track and follow-up with study participants
· Investigate validity and completeness of reported hospitalizations and deaths
· Develop systems for death investigations including development of scripts to obtain information for participants reported deceased by informants,
· Ensure the conduct of relevant study questionnaires for reported hospitalizations and deaths,
· Establish communications with relevant hospitals and agencies, i.e. DOH, NDI, to confirm reported deaths and obtain copies of death certificates, where applicable.
· Maintain communications with data coordinating center for submission of required documentation to confirm participant hospitalizations and deaths
· Integrate local systems for death investigations with local hospitals and agencies to obtain more quantitative data sets
· Work with electronic health information systems such as Bronx RHIO and Healthix to conduct searches for reported hospitalizations and deaths.
· Collaborate with the central coordinating center to develop systems to align local systems for death investigations with study wide searches using the Nation death index
· Attend and represent local field center on local and on national committees to report on local procedures for death investigations and progress
· Create and manage spreadsheets to track local efforts to obtain information for participants who are lost-to-follow up and/or reported deceased
· Develop systems for confirming hospitalizations and deaths reported outside of the country during annual follow up contacts
· Provide incentive to participants for self-reported hospitalizations outside of the annual follow-up period and to informants for providing further information for reported deaths that result in the acquisition of a death certificate.
Additional responsibilities
· Provide Technical Back up as needed
· Transmission of Data to reading center, uploading, and downloading equipment and documents.
· Troubleshoot software issues to facilitate transmission of study data.
· Train new team members in the area of concentration
· Enters and maintains data in several databases, prepares routine and ad hoc reports for local and study wide meetings
· Perform quality control procedures to ensure accurate and completeness of study data reported for hospitalizations and deaths
· Reviews data in various systems for quality assurance before reports are distributed to senior staff for review, prior to submission to Center.
· Assist MPI’s with IRB approval issues, consenting, and preparation of data files reporting/progress report.
· Assist with communications to the HCHS-SOL Steering Committee and other activities
Assist in supervision of Admin Assistant
· Perform other duties as assigned.
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